Friday 30/3/07 Appointment in Sky Ward with Chloe's consultant who explains that the results of Chloe's last CT scan shows Chloe needs to have two operations one to remove part of her diaphragm which one tumour is growing through, which could affect her breathing and a second operation to remove the tumours in her abdomen with the possibility of a colostomy bag.Consultant tells us that operations are major surgery and expresses her doubts about whether they should be carried out as the chances of full success are very slim and could leave Chloe on Oxygen to breathe.
Saturday 31/3/07
The Joshua foundation organized a trip to see Fame in the New Theatre Cardiff.Chloe is taken in a pink limosuine and we have a meal in the Hard Rock Cafe plus a behind the scenes tour just before the show.The star blows Chloe a kiss.
Wednesday 4/4/07 Hospital appointment for Echosound scan and Blood tests..
Thursday 5/4/07 We have an appointment to talk about Chloe's operation with the surgeon in the Heath talk through operation but ask about referral to Great Ormond Street.
Sunday 8/4/07 Joshua foundation organize a Easter Bunny Breakfast at the Hard Rock Cafe Chloe has a good time then we go for a walk to Margam again!
Monday 9/4/07,Tuesday 10/4/07
Went to Space Clinic to discuss going to Great Ormond Street with consultant. 3.00 p.m. Chloe starts fifth batch of chemotherapy.(Dr Kushner's protocol)
Wednesday 11/4/07,Tuesday 12/4/07,Thursday 13/4/07. Chloe on Chemotherapy.
Friday 13/4/07 Chloe's last day of Chemo came home at 3.00 p.m. went for meal in restaurant.
Monday 16/4/07 Community nurse calls to give Chloe her GCSF injections to stimulate the white blood cells. Chloe went to ballet class for the first time since diagnosis. Tuesday 17/4/07 Community nurse gives Chloe 2nd GCSF
Wednesday 18/4/07
Went to Skyward for Chloe's third GCSF then went to Roath Park and had a go on peddle boats,Chloe took her bike.
Thursday 19/4/07 Saturday 21/4/07
Went to Skyward for 4th,5th and 6th GCSF to stimulate white blood cells in bone marrow.
Sunday 22/4/07 Chloe not at all well with low blood count,went to Skyward,Chloe given medication and 2 units of blood plus 7th GCSF. Monday 23/4/07 Chloe has 8th GCSF injection.Chloe not very well but went to ballet anyway.
Tuesday 24/4/07 Skyward for 9th GCSF.
Wednesday 25/4/07
Chloe has 10th GCSF injection.Go to Millenium Centre to watch show called "Jump" a good night out.
Thursday 26/4/07 Chloe's 11th GCSF plus needs 3 units of blood but we only have time for 2 as we are travelling to London to see consultant in Great Ormond Street.
Friday 27/4/07
We have an appoitment with Surgeon in Great Ormond Street.The surgeon Dr E.M.Keily is very blunt about the slim chance of the operation being a success and makes Chloe and Lesley cry. Paul asks the surgeon is he the best hope we have of a successful operation and he tells Paul that he is really our only hope.We leave the appointment feeling very depressed.We return to Cardiff for Chloe's 12th GCSF and the last unit of blood.
Tuesday 1/5/07 Chloe goes back to Skyward to sart her 6th batch of chemotherapy.
Sunday 6/5/07 Chemo ended and Chloe has GCSF injection course started again.
Monday 14/5/07 GCSF injections finish.
22 /23 /24/5/07 Chloe goes to school. Friday 25/5/07 Chloe needs 2 more units of blood, see Dr Haine who is very positive about the forthcoming operation.
Tuesday 29/5/07 We all arrive at Great Ormond Street at 9.45. We are visited by Mr Kiely and another surgeon who explains the operation to us.
Wednesday 30/5/07
This is definitely one of the worst days of our lives. Chloe goes into operating theatre at 10.00 am.We go out of hospital as the operation is due to last many hours.Pauls mobile rings an hour later and our hearts stop,we are told to come back to the hospital to speak to the surgeon.We knew that it is the worst possible news and something we had been dreading for months.The surgeon would not operate because the tumours had spread too far,we knew that this was our only hope, how is Chloe going to take the news.We go to see Chloe in the recovery room as she comes round we tell her that the surgeon didn't operate and all she can say is "That means I can do Race for Life" our hearts are shattered!
Friday 1/6/07 We come home. Sunday 17/6/07 Chloe goes to Bridgend Youth Theatre for the first time since diagnosis,she goes without her wig and is practically bald! she is so brave, she puts us to shame.
Monday 18/6/07 Arrange for Chloe to have her GCSF injections in School via the community nurse Annie. Annie is an amazing person, Chloe and us loved her, she bescame part of our family through Chloe's illness. Saturday 23/6/07 Chloe still receiving GCSF injections, has to go to SkyWard and is prescribed medication for terrible mouth ulcers caused by the chemo.
Wednesday 27/6/07 Chloe does "Race for Life" in Bute Park dressed as a fairy with her ballet teacher Amanda,and many friends from ballet including Rachel,Elle,Sara,Zoe,Amy and Sally,and Chloe's nan.
Friday 13/7/07 Chloe starts 8th batch of chemotherapy.In discussion with Consultant have decided Chloe should be given Ivado (the same as first protocol) as this was very effective when used initially.
Monday 16/7/07 Thursday 19/7/07 Chloe goes to school and excited about her birthday on the 20th.
Friday 20/7/07 CHLOE'S BIRTHDAY 14 TODAY.We went for a meal with Luke,Laura and Chloe's Nan.
Saturday 21/7/07 Chloe goes to "Adventures" for her Birthday with several of her schoolfriends.
Monday 30/7/07 Chloe has GCSF injection number 13 !! Tuesday 31/7/07 We go to Bristol Zoo.
Thursday 2/8/07 Went ot Oakwood Park. Friday 3/8/07 Chloe goes to Skyward for CT scan.
Monday 6/8/07 Went to Longleat. Thursday 9/8/07 Sunday 12/8/07 Went to Eurodisney
Monday 13/8/07 Went to Birmingham Childrens Hospital to discuss trying new trial drugs with Dr Pam Kearns.
Thursday 16/8/07 Appointment with Dr Jenney who has results of last CT Scan.There is some shrinkage in one of the two main tumours so she has decided to give Chloe two more courses of the Ivado Chemotherapy.
Tuesday 21/8/07 Chloe has GFR Kidney test and has already had new heart echosound test ready to start on 9th batch of Chemotherapy.
Thursday 23/8/07 Chemo finished Chloe comes home.
Saturday 25/8/07 Because Chloe has to start a long series of GCSF injections again Chloe has asked to do them herself !.Chloe does the injection under supervision today and again on Sunday.Keeps on giving herself injection daily until -
Monday 3/9/07 Chloe's blood count has risen and she can now stop the injections.
Tuesday 4/9/07 Chloe goes back to school. Friday 14/9/07 Echosound OK so Chloe starts 10th batch of Chemotherapy.
Tuesday 18/9/07 Chloe gives herself GCSF injection until 27/9/07
Tuesday 2/10/07 Chloe has a piano lesson with Mrs Hawkes who comes to the house and Chloe finds out today that she is playing Cinderella in the school play.
Wednesday 3/10/07 Chloe has CT scan and on 4/10/07 we are told the tumours have all started to grow so the chemotherapy has stopped being effective.It is another terrible day.
Friday 5/10/07 Chloe has bad pain in her back.
Tuesday 9/10/07 Chloe's back still in pain and so we go to SkyWard to see doctors.
Thursday 11/10/07 Back to Birmingham to finalize start date of trial drugs.Chloe's back is still very painful.
Wednesday 17/10/07 Chloe goes to SkyWard for 3 units of blood and is precribed severedol for the continuing back pain,plus a fentanyl patch which gives a constant trickle of pain killer.
Friday 19/10/07 Chloe goes to Birmingham has CT scan and starts clinical trial of Gemicitabine and Oxaplatin used in combination.Chloe feeling very sick and back is giving her a lot of pain still.
Saturday 27/10/07 Chloe cannot stand pain any longer and we go to SkyWard in the night to try and get her some relief.
Sunday 28/10/07 Chloe staying in hospital to review painkillers, right lung has filled with fluid so drain is fitted on 30/10/07.
Thursday 1/11/07 Chloe has first visit to Velindre for radiotherapy to shrink tumour which is obstructing her breathing and swallowing.
Friday 2/11/07 Chloe needs second drain in left lung.
Tuesday 6/11/07 Chloe starts on oral etoposide chemotherapy which is taken every other day,on Friday 9/11/07 Chloe has second dose of Radiotherapy at Velindre.Chloe is no longer able to continue with trial drugs at Birmingham and discussion with Consultant we are told that they had not been effective even though it was just one dose it should have made an improvement if it was going to work.
Saturday 10/11/07 Chloe is allowed to come home in the afternoons as long as she goes back to hospital to sleep.
Monday 12/11/07 Chloe's medication is increased to try and reduce the continuous pain.
Wednesday 14/11/07 Chloe has the temporary left hand chest drain removed and then on Saturday 17/11/07 Chloe has operation for fitting of permanent chest drain and temporary right hand removed.
Monday 19/11/07 Chloe is finally discharged from hospital after being largely confined to bed with chest drains for 3 weeks!
Chloe is now on ever increasing quantities of pain killers including Diamorphine, Methadone, and Midozolam plus Fentanyl patches.She still continues to go to school as often as she has the strength, she is determined to be the star of the Cinderella play.
Wednesday 5/12/07 Chloe goes to Velindre for more radiotherapy to try and stop the back pain
Thursday 6/12/07 Chloe manages the dress rehearsal for Cinderella, Jan the school Nurse tells us she was brilliant and word perfect.In the afternoon we are back to Velindre for more radiotherapy.
Friday 7/12/07 More Radiotherapy at Velindre, Chloe visits SkyWard for blood cross match as due for transfusion on Saturday morning.Chloe still in pain in the evening so we call out the duty nurse who increases the pain relief medication.
Saturday 8/12/07 Chloe our beautiful daughter who was 14years old has passed away in the early hours of the morning, at least she has no more pain and is at peace.
Paul and myself would like to thank everyone involved in Chloe's care Princess Hospital of Wales Bridgend for referring Chloe to Cardiff Heath Hospital and Sky Ward, LATCH Children's Cancer Charity, Great Ormond Street Hospital, Birmingham Children's Hospital, All the Consultants, Doctor's, Community Nurses, Nurses, Play Specialists, Physiotherapists, Velindre Hospital, Ashfield Surgery.
I would just like to say a huge thank you to everyone who supported Chloe while she was in school Mr Thomas Head teacher, all of Chloe's teachers, Chloe's friends who helped and supported her while she was in school Rachel skinner, Lauren David, Kelsey Ellis, Rachel Gronow, Abi Trigg, Hannah Fry, Emily Pearce, Abbie Oliver, all of Chloe's drama and music buddies, if I have forgotten to mention anyone else who helped Chloe a huge thank you from us.
Karen and Jan I will never forget how much you supported Chloe especially the last few weeks she was so determined to be in school and thank you Mrs Bevan for letting Chloe be Cinderella. Chloe wanted to go to the dress rehearsal she was so funny she wouldn’t let me stay she said it would spoil the main show, she wanted Jan to be with her, she was so happy when I collected her from school she said mum I remembered all my lines didn't I Jan, even in Velindre Hospital when she was having Radiotherapy she was reciting her lines telling all the nurses to listen to her being Cinderella. Also a huge thank you to Mrs Hawkes music teacher who came to the house to help Chloe with the piano, and Mr Greenway for helping Chloe with her music, singing and drama, and everybody else who supported and helped her.