This is Chloe's mum Lesley writing Chloe's story, I would like you all to know how brave and determined our beautiful daughter Chloe was coping with cancer at the young age of 13 years, she showed remarkable courage and strength for someone so young and we are so proud of our beautiful daughter and miss her so much, she will never be forgotton.
It all started just before christmas 2006, Chloe told us her back was aching she wasn't sleeping too well either,we just thought it was growing pains, Chloe was always busy with school, ballet, youth theatre,music. Christmas came and went, she even ran a 5mile run on boxing day. My other daughter Laura took Chloe to casualty on the 27/12/06 she was told to give Chloe ibuprophen and told if pain didn't ease to fetch Chloe back.
Chloe said the pain had moved to her chest and her left arm, I took Chloe to casualty on 31/12/06.
ECG and X-Ray were given and Chloe was diagnosed with pneumonia, she had to stay in hospital but didn't mind,Chloe was being looked after.
They wanted to do more tests on Chloe,they wanted to do an ultra sound scan to check on Chloe's lungs, and a CT scan ( Computerised Tomography ) scanner takes multiple x ray films and these are converted by a computer into a 3D view of part of the body,at this moment I knew something was wrong the doctor wanted to speak to me and asked if Paul my husband could come to the hospital.
The Doctor told us he had seen lumps on Chloe's left kidney and abdomen and was being refered to the Children's Oncology Hospital in Cardiff he also prepared us for what we were going to see, children who were very poorly, but he reasured us that Chloe was being looked after.
Arrived in Cardiff hospital on 3/1/07 met Consultant who explained to us who she was and what they were going to do to Chloe.
Thursday 4/1/07
Biopsy taken on Chloe's lumps,bone marrow and chest fluid.
Friday 5/1/07
Chloe didn't feel well in a lot of pain, Paracetamol and Codiene given, we all felt scared and anxious so sad for Chloe she didn't deserve this.
Sunday 7/1/07
Chloe seemed a lot brighter today, Paul asked the Doctor about Chloe's illness she said Chloe does have lots of lumps but can not confirm diagnosis until the biopsy results have come back the wait was unbearable not knowing.
Monday 8/1/07
Doctor said we could go home for a couple of hours Chloe seemed ok when walking to the car I suddenly noticed how much weight Chloe had lost she didn't look well,came home and Chloe was so cold she couldn't get warm and wanted to go back to hospital she felt ill and sick,arrived back at hospital bloods taken, urine sample given, anti sickness tablet given to Chloe.
Tuesday 9/1/07
Had results from biopsy Chloe has CANCER ALVEOLAR RHABDOMYO SARCOMA,Sarcoma's are rare types of cancers that develop in the bone, muscle or cartilage we all felt devastated by this news but we are staying positive and strong for Chloe. They have sent Chloe's biopsies to Great Ormond Street Hospital to make sure of diagnosis. Physiotherapist comes to see Chloe about her breathing because of the fluid around her lungs, Ann the physiotherapist gives Chloe a blow pipe, the idea is Chloe has to breathe into this pipe and keep the balls up as long as she can.
Wednesday 10/1/07
Chloe needed an ECG to check on heart rhythm, ultra sound scan to check on heart function, bone scan to check if cancer had gone into bones,also took blood pressure of all limbs individually. GFR Ink given to check on Chloe's kidneys.
Thursday 11/1/07
Chloe's weight 50.1kg, measured around stomach, fluid 77.4cm
Chloe having a operation to fit a hickman line, the line is inserted into the vein and brought out through the chest wall where it is secured at the exit site by a stitch, when the line is not in use, the external part is secured in a special bag or with tape to prevent pulling and discomfort. The hickman line requires a dressing which needs to be changed weekly and the exit site cleaned. The line requires flushing when not in use. It is important that the cotton pouch holding the lines is washed 2-3 times a week to minimise risk of infection.
Chloe so scared of operation went to theatre at 10.15am, came out of theater at 1.30pm, Chloe was very sleepy but hickman line fitted successfully.
Chloe's consultant came to see us to explain all the treatments that Chloe would be having and Paul saw scan of Chloe's body and realised the seriousness of Chloe's illness, the bone marrow was clear and all the other tests were good. bloods taken first time from Chloe's hickman line to see how Chloe's blood is after G F R, every hour three in total.
Friday 12/1/07
Chloe's weight 52.7kg
Chloe's first Chemotherphy
Chloe is scheduled to have six courses of Chemotherepy
Chloe's Chemotherapy is called ivado and is a combination of Ifosfamide,Doxorubicin,Dactinomycin and Vincristine with Mesna to protect the bladder.
This protocol is over three days.
Chloe is very sick and her oxygen levels are low so given cyclazine anti-sickness and given oxygen mask.
Doctors querying if Chloe is well enough for Chemotherapy.
11.00 am Chloe starts Chemotherapy.
Chloe really struggling with her urine and bowels and feeling very dizzy and sick all the time.
Given furusamide to help with weeing.
Nurse substitutes oramorph for severedol.
Chloe's oxygen levels drop to 87 during sleep so oxygen mask used.
Saturday 13/1/07
Chloe's weight 52.4kg
Chloe oxygen levels still very low and so X-ray organized to try and find reason,they think it might be fluid building up around body cavity or heart being affected by chemotherapy.
Bloods also sent for testing as salt levels have changed.
Sunday 14/1/07
Chloe admitted to Intensive Care, concerned about oxygen levels, and fluid around Chloe's lungs. Ultra Sound Scan done.
Chloe has to wear forced oxygen mask, Chloe scared of mask diffucult to get used to, Ultra Sound Scan again to see how much fluid around lungs.
Chloe asked Doctor when she can go back to Sky Ward (bless her)
Local anaesthetic given to drain the fluid, inserted a tube temporarily, where the needle was inserted secured with stitches, Chloe was fantastic through the whole procedure.
At last some good news the tube is draining the fluid away and the procedure was a success.
6.30 p.m. Chloe allowed back onto Sky Ward, Chloe was so happy and we were very relieved but Chloe is beginning to realize how ill she is.
Monday 15/1/07
Chloe a lot brighter today, OBS, Blood Pressure, Oxygen levels all fine, even taken down fluid drip. First time Chloe ate in four days cereal and milk. Playspecialist asked us if we wanted to do some craft in the adolescent room, Chloe made cards but was tired returned to room. Physiotherapist called to check on Chloe's breathing.Chloe's oxygen levels slightly low 91, should be above 92.
Dietitican called to explain that Chloe needed to eat high calorie food because of her weight loss. Consultant called to discuss pain relief. MRI scan required to check on limbs, and all over body. Temperture 38, paracetmol given. Playspecialist talked to Chloe about her illness she became tired and tearful.
Tuesday 16/1/07
Chloe's weight 47.9kg
Doctor calls to tell Chloe thay they want to remove her chest drain,Chloe has x-ray which is clear and drain is removed.Chloe has to go for MRI scan, Chloe given arm and breathing exercises.
Chloe running a temperature given vancomycin antibiotic at 6.50pm, temp 38.0 given Calpol.Given spironalactone and frusemide diuretic and ondansetron anti-sickness plus meropenum anti biotic. They are having difficulty taking blood from Chloe's hickman line.
Wednesday 17/1/07
Chloe's weight 47.5kg
Chloe has visits from Doctor,dietician and School Teacher.Tried to take blood from hickman line still not working,Nurse does needle prick,bless Chloe. Sodium docusate (laxative) given. Chloe seems well in herself.
Thursday 18/1/07 / Friday 19/1/07
Chloe's weight 47.5kg / 47.6kg
Medication given, Doctors discussed pain relief codeine and buprenaphine perscribed, X-ray required for left leg to see where the cancer started from, we may be able to go out for a couple of hours over the weekend.
Medication given, Chloe spent half an hour doing maths with teacher, seems brighter today. Friend came to see Chloe from school who also had cancer but is in remission, he understands how Chloe is feeling, trip to X-ray to see if Chloe's hickman line is in the right place still not bleeding back. Chemotherapy only vincristine.
Chloe asked when would her hair start to fall out (I felt so sad for Chloe, no child should have to go through this).
Saturday 20/1/07 / Sunday 21/1/07
Chloe's weight 46.9kg / 46kg
Chloe's been in a lot of stomach pain during the night, calpol and buprenorphine given,and intravenous antibiotic, all other medication taken. Chloe sleeps most of the day.
Chloe still having a lot of stomach pains, buprenorphine given this is a small tablet which is given under the tongue, also very sore throat difflam spray used to numb the area, omeprezole (gastric reflux) coats the stomach. Hickman line still not bleeding back, Fluconazole (anti fungal) given for Chloe's sore throat.
Monday 22/1/07 / Tuesday 23/1/07 Chloe's weight 45.8kg / 44.1kg
Chloe been in considerable pain all evening with sore throat, medication given some given intravenous, hickman line still not bleeding back, Chloe not so good today in a lot of pain with mouth ulsers.
Chloe's hair starting to fall out (this is so cruel for Chloe) Chloe still in a lot of pain stomach, mouth ulcers, given medication, Chloe received letters and gifts from school which cheered her up. Ward sister came to check on hickman line success she got it to work. They are going to put up a TPN Intravenous drip contains salts, sugar to help build Chloe up. Dietician recommends maxijul contains loads of calories, Chloe hated it, and also calogen given which is a high calorie medicine, Chloe also likes raspberry Fortis drinks.
Wednesday 24/1/07 / Thursday 25/1/07 Chloe's weight 44.6kg
Taken blood from Hickman line, Chloe running a high temperature, given antibiotic meropenem and calpol, Doctor checks on Chloe mouth ulcers really sore diffilam spray used to ease the pain, nurse describes chemo as being like paint stripper that starts in mouth and carries on through to the bottom. Medication given plus sevredol pain killer (morphine). Chloe not feeling to good bad dreams and images may be side effects of sevredol. Went in adolescent room did craft, Chloe made a frog. Physiotherapist asked Chloe to walk up and down corridor, Chloe did brilliant.
Friday 26/1/07 / Saturday 27/1/07 Chloe's weight 46.5kg
Medication given, Doctor reviewing medication, all well. Met social worker Kay who works for LATCH (Children's Cancer Charity). Kay is a lovely person and helped us so much.
Sunday 28/1/07 / Monday 29/1/07 Chloe's weight 44.7kg
Chloe still getting stomach pains (constipated) medication can cause this might stop the sevredol , Chloe's missing her brother Luke, and sister Laura they are coming to visit on Monday. Consultant Clinical Psychologist came to see us to try and find ways to help Chloe to come to terms with her cancer, also the hospital lady chaplain came to see us for a friendly chat. Consultant asks Chloe if she would like to have a nasogastric feeding tube fitted this is (a thin,flexible tube is gently inserted into the nostril, down the back of the throat, down the gullet, and into the stomach), Chloe wouldn't have to worry so much about eating, also Chloe's TPN could be reduced from 24hrs to 16hrs enable us to come home for a few hours, Chloe readily agress. Buscopan and paracetomel given for stomach cramps, Chloe says please no more tablets i've had enough (bless).
Saturday 3/2/07 / Sunday 4/2/07
11.00 am Chloe has second chemotherapy Vincristine,Dactinorycin,Doxorubin,followed at 4.40 by Ifosamide.
Chloe has second day of second dose of chemo (Doxorubin and Ifosamide) again on Sunday. Chloe been sick a few times it is very tough on Chloe.
Monday 5/2/07
Chloe's consultant tells us Chloe is doing well and can go home until 3rd chemo is due.Arrived home at 7.00 pm Chloe has tea but has stomach pains and goes to bed.
10.00 am Clinic today,Chloe is due another Vincristine Chemo.Devastating day because today we learn the cancer is Desmoplastic Round Cell Sarcoma and not Alveola Rhabdomysarcoma.Choe has X ray to check lungs are still clear of fluid, they are ok but NG tube needs to be changed.
Tuesday 13/2/07
We went to cardiff to buy Chloe a wig, we bought two wigs one curly and the other straight with shades of blonde.
Friday 16/2/07
Went to Skyward for x ray on lungs, fluid ok but Ng tube is in wrong place and needs changing.
Friday 23/2/07 Saturday 24/2/07
Weight 48kg
Chloe needs echoscan to see how much fluid is around her heart before starting the new chemotherapy protocol.
3.00pm Chloe starts on new chemotherapy for Desmoplastic Round Cell sarcoma and is given Nozinan anti sickness/sleep medication.Chloe not passing enough urine and accidentally pulls out NG tube during the night.
Monday 26/2/07
We are told that Chloe has had too much Vincristine as they were not familiar with the protocol.Very apologetic but Chloe has to stay under observation.
Tuesday 27/2/07
Starts GCSF injections.
Friday 2/3/07
Chloe has appointment with Consultant and leaves her speachless when she asks "when can I go back to school ?"
Saturday 3/3/07
Chloe's medication
Omeprazole (Gastric Reflux), Spironolactone (Diuretic), Fluconazole (Anti-Fungal), Calagen (Calories), Slow-K (Potassium), Septrin (Anti-Bacterial Agent) Saturday and Sunday only.
Chloe needed GCFS, trip to hospital (Sky-Ward). Meeting friends from school, they are having a meal in the harvester this is Chloe's first time with school friends, Chloe looked beautiful.
The school friends are Rachel Skinner, Kelsey Ellis, Abi Trigg, Hannah Fry, Lauren David, Emily Pearce, Abbie Oliver, and Rachel Gronow. I hope these girls do not mind me naming them; they helped Chloe so much during her illness, Paul and myself knew that they would look out for Chloe.
All of Chloe's year helped her when she went to school.
Sunday 4/3/07 / Monday 5/3/07
All medication given, Sky-Ward GCSF given, Chloe well.
All medication given, Sky-Ward GCSF given, Chloe feeling down today tired, picked up later went over Hannah Fry's house and met up with the group of friends, Chloe needs blood transfusion tomorrow.
Tuesday 6/3/07 / Wednesday 7/3/07
Hospital (Sky-Ward) Chloe needs 3 units of blood, all medication given, GCSF given, spent all day in hospital.
All medication given, community nurse gives Chloe her 9th GCSF. Joshua foundation organize for us all to see fame in the new theatre Cardiff, and also hire a pink limousine, Chloe is so excited.
Thursday 8/3/07 Friday 9/3/07
All medication taken, went to Art Cafe in Porthcawl did painting, good day, Chloe well.
Mari and Lowri came to see Chloe, they watched DVDS, and did teenage stuff painting nails and make-up etc, etc. Also I would like to say how supportive Mari and Lowri were during Chloe's illness, when they visited Chloe in hospital they were so brave and always made Chloe smile.
Friday 16/3/07 Wednesday 21/3/07 Chloe's weight 49.6kg
Chemotherapy due (Forth Dose)
Took blood, weight and height
Etoposide, Ifosfamide, Mesna, (protects the bladder) Ondansatron (anti-sickness) all given intravenous, Chloe doing well.
Amy came to see Chloe, (Amy was also very supportive towards Chloe during her illness.)
Day 5 of chemo went in adolescent room with play specialist Anne did a Chloe board which is, you get a huge piece of card and what ever interest you have you glue onto the card out of magazines we had such a laugh Anne was so funny and Chloe's board was amazing so much detail. Music lady came onto ward to show the children how music can be therapeutic, also did relaxation, Allowed home after hydration, Good day.
Thursday 22/3/07 Sunday 25/3/07
Hospital appointment, Chloe had CT scan, they inserted a canular in Chloe's hand she had to drink some fluid, then they inserted this dye into canular, all of Chloe's organs become more visible. All medication taken. Chloe well, spent day with Rachel.
Monday 26/3/07 Thursday 29/3/07
All medication taken, Chloe went to school today (first time since Chloe's been ill); she went for art and enjoyed, also stayed for geography and lunch.We are so happy Chloe went to Bryntirion Comprehensive School as they are really supportive in helping Chloe to get back to her normal routine.She was met by Mrs Karen Owen head of year 10 and Jan the school nurse.
Friday 30/3/07
Appointment in Sky Ward with Chloe's consultant who explains that the results of Chloe's last CT scan shows Chloe needs to have two operations one to remove part of her diaphragm which one tumour is growing through, which could affect her breathing and a second operation to remove the tumours in her abdomen with the possibility of a colostomy bag.Consultant tells us that operations are major surgery and expresses her doubts about whether they should be carried out as the chances of full success are very slim and could leave Chloe on Oxygen to breathe.
Saturday 31/3/07
The Joshua foundation organized a trip to see Fame in the New Theatre Cardiff.Chloe is taken in a pink limosuine and we have a meal in the Hard Rock Cafe plus a behind the scenes tour just before the show.The star blows Chloe a kiss.
Wednesday 4/4/07 Hospital appointment for Echosound scan and Blood tests..
Thursday 5/4/07 We have an appointment to talk about Chloe's operation with the surgeon in the Heath talk through operation but ask about referral to Great Ormond Street.
Sunday 8/4/07 Joshua foundation organize a Easter Bunny Breakfast at the Hard Rock Cafe Chloe has a good time then we go for a walk to Margam again!
Monday 9/4/07,Tuesday 10/4/07
Went to Space Clinic to discuss going to Great Ormond Street with consultant. 3.00 p.m. Chloe starts fifth batch of chemotherapy.(Dr Kushner's protocol)
Wednesday 11/4/07,Tuesday 12/4/07,Thursday 13/4/07. Chloe on Chemotherapy.
Friday 13/4/07 Chloe's last day of Chemo came home at 3.00 p.m. went for meal in restaurant.
Monday 16/4/07 Community nurse calls to give Chloe her GCSF injections to stimulate the white blood cells. Chloe went to ballet class for the first time since diagnosis.
Tuesday 17/4/07 Community nurse gives Chloe 2nd GCSF
Wednesday 18/4/07
Went to Skyward for Chloe's third GCSF then went to Roath Park and had a go on peddle boats,Chloe took her bike.
Thursday 19/4/07 Saturday 21/4/07
Went to Skyward for 4th,5th and 6th GCSF to stimulate white blood cells in bone marrow.
Sunday 22/4/07 Chloe not at all well with low blood count,went to Skyward,Chloe given medication and 2 units of blood plus 7th GCSF.
Monday 23/4/07 Chloe has 8th GCSF injection.Chloe not very well but went to ballet anyway.
Tuesday 24/4/07 Skyward for 9th GCSF.
Wednesday 25/4/07
Chloe has 10th GCSF injection.Go to Millenium Centre to watch show called "Jump" a good night out.
Thursday 26/4/07 Chloe's 11th GCSF plus needs 3 units of blood but we only have time for 2 as we are travelling to London to see consultant in Great Ormond Street.
Friday 27/4/07
We have an appoitment with Surgeon in Great Ormond Street.The surgeon Dr E.M.Keily is very blunt about the slim chance of the operation being a success and makes Chloe and Lesley cry. Paul asks the surgeon is he the best hope we have of a successful operation and he tells Paul that he is really our only hope.We leave the appointment feeling very depressed.We return to Cardiff for Chloe's 12th GCSF and the last unit of blood.
Tuesday 1/5/07 Chloe goes back to Skyward to sart her 6th batch of chemotherapy.
Sunday 6/5/07 Chemo ended and Chloe has GCSF injection course started again.
Monday 14/5/07 GCSF injections finish.
22 /23 /24/5/07 Chloe goes to school. Friday 25/5/07 Chloe needs 2 more units of blood, see Dr Haine who is very positive about the forthcoming operation.
Tuesday 29/5/07 We all arrive at Great Ormond Street at 9.45. We are visited by Mr Kiely and another surgeon who explains the operation to us.
Wednesday 30/5/07
This is definitely one of the worst days of our lives. Chloe goes into operating theatre at 10.00 am.We go out of hospital as the operation is due to last many hours.Pauls mobile rings an hour later and our hearts stop,we are told to come back to the hospital to speak to the surgeon.We knew that it is the worst possible news and something we had been dreading for months.The surgeon would not operate because the tumours had spread too far,we knew that this was our only hope, how is Chloe going to take the news.We go to see Chloe in the recovery room as she comes round we tell her that the surgeon didn't operate and all she can say is "That means I can do Race for Life" our hearts are shattered!
Friday 1/6/07 We come home. Sunday 17/6/07 Chloe goes to Bridgend Youth Theatre for the first time since diagnosis,she goes without her wig and is practically bald! she is so brave, she puts us to shame.
Monday 18/6/07 Arrange for Chloe to have her GCSF injections in School via the community nurse Annie. Annie is an amazing person, Chloe and us loved her, she bescame part of our family through Chloe's illness. Saturday 23/6/07 Chloe still receiving GCSF injections, has to go to SkyWard and is prescribed medication for terrible mouth ulcers caused by the chemo.
Wednesday 27/6/07 Chloe does "Race for Life" in Bute Park dressed as a fairy with her ballet teacher Amanda,and many friends from ballet including Rachel,Elle,Sara,Zoe,Amy and Sally,and Chloe's nan.
Friday 13/7/07 Chloe starts 8th batch of chemotherapy.In discussion with Consultant have decided Chloe should be given Ivado (the same as first protocol) as this was very effective when used initially.
Monday 16/7/07 Thursday 19/7/07 Chloe goes to school and excited about her birthday on the 20th.
Friday 20/7/07 CHLOE'S BIRTHDAY 14 TODAY.We went for a meal with Luke,Laura and Chloe's Nan.
Saturday 21/7/07 Chloe goes to "Adventures" for her Birthday with several of her schoolfriends.
Monday 30/7/07 Chloe has GCSF injection number 13 !! Tuesday 31/7/07 We go to Bristol Zoo.
Thursday 2/8/07 Went ot Oakwood Park. Friday 3/8/07 Chloe goes to Skyward for CT scan.
Monday 6/8/07 Went to Longleat. Thursday 9/8/07 Sunday 12/8/07 Went to Eurodisney
Monday 13/8/07 Went to Birmingham Childrens Hospital to discuss trying new trial drugs with Dr Pam Kearns.
Thursday 16/8/07 Appointment with Dr Jenney who has results of last CT Scan.There is some shrinkage in one of the two main tumours so she has decided to give Chloe two more courses of the Ivado Chemotherapy.
Tuesday 21/8/07 Chloe has GFR Kidney test and has already had new heart echosound test ready to start on 9th batch of Chemotherapy.
Thursday 23/8/07 Chemo finished Chloe comes home.
Saturday 25/8/07 Because Chloe has to start a long series of GCSF injections again Chloe has asked to do them herself !.Chloe does the injection under supervision today and again on Sunday.Keeps on giving herself injection daily until -
Monday 3/9/07 Chloe's blood count has risen and she can now stop the injections.
Tuesday 4/9/07 Chloe goes back to school. Friday 14/9/07 Echosound OK so Chloe starts 10th batch of Chemotherapy.
Tuesday 18/9/07 Chloe gives herself GCSF injection until 27/9/07
Tuesday 2/10/07 Chloe has a piano lesson with Mrs Hawkes who comes to the house and Chloe finds out today that she is playing Cinderella in the school play.
Wednesday 3/10/07 Chloe has CT scan and on 4/10/07 we are told the tumours have all started to grow so the chemotherapy has stopped being effective.It is another terrible day.
Friday 5/10/07 Chloe has bad pain in her back.
Tuesday 9/10/07 Chloe's back still in pain and so we go to SkyWard to see doctors.
Thursday 11/10/07 Back to Birmingham to finalize start date of trial drugs.Chloe's back is still very painful.
Wednesday 17/10/07 Chloe goes to SkyWard for 3 units of blood and is precribed severedol for the continuing back pain,plus a fentanyl patch which gives a constant trickle of pain killer.
Friday 19/10/07 Chloe goes to Birmingham has CT scan and starts clinical trial of Gemicitabine and Oxaplatin used in combination.Chloe feeling very sick and back is giving her a lot of pain still.
Saturday 27/10/07 Chloe cannot stand pain any longer and we go to SkyWard in the night to try and get her some relief.
Sunday 28/10/07 Chloe staying in hospital to review painkillers, right lung has filled with fluid so drain is fitted on 30/10/07.
Thursday 1/11/07 Chloe has first visit to Velindre for radiotherapy to shrink tumour which is obstructing her breathing and swallowing.
Friday 2/11/07 Chloe needs second drain in left lung.
Tuesday 6/11/07 Chloe starts on oral etoposide chemotherapy which is taken every other day,on Friday 9/11/07 Chloe has second dose of Radiotherapy at Velindre.Chloe is no longer able to continue with trial drugs at Birmingham and discussion with Consultant we are told that they had not been effective even though it was just one dose it should have made an improvement if it was going to work.
Saturday 10/11/07 Chloe is allowed to come home in the afternoons as long as she goes back to hospital to sleep.
Monday 12/11/07 Chloe's medication is increased to try and reduce the continuous pain.
Wednesday 14/11/07 Chloe has the temporary left hand chest drain removed and then on Saturday 17/11/07 Chloe has operation for fitting of permanent chest drain and temporary right hand removed.
Monday 19/11/07 Chloe is finally discharged from hospital after being largely confined to bed with chest drains for 3 weeks!
Chloe is now on ever increasing quantities of pain killers including Diamorphine, Methadone, and Midozolam plus Fentanyl patches.She still continues to go to school as often as she has the strength, she is determined to be the star of the Cinderella play.
Wednesday 5/12/07 Chloe goes to Velindre for more radiotherapy to try and stop the back pain
Thursday 6/12/07 Chloe manages the dress rehearsal for Cinderella, Jan the school Nurse tells us she was brilliant and word perfect.In the afternoon we are back to Velindre for more radiotherapy.
Friday 7/12/07 More Radiotherapy at Velindre, Chloe visits SkyWard for blood cross match as due for transfusion on Saturday morning.Chloe still in pain in the evening so we call out the duty nurse who increases the pain relief medication.
Saturday 8/12/07 Chloe our beautiful daughter who was 14years old has passed away in the early hours of the morning, at least she has no more pain and is at peace.
Paul and myself would like to thank everyone involved in Chloe's care Princess Hospital of Wales Bridgend for referring Chloe to Cardiff Heath Hospital and Sky Ward, LATCH Children's Cancer Charity, Great Ormond Street Hospital, Birmingham Children's Hospital, All the Consultants, Doctor's, Community Nurses, Nurses, Play Specialists, Physiotherapists, Velindre Hospital, Ashfield Surgery.
I would just like to say a huge thank you to everyone who supported Chloe while she was in school Mr Thomas Head teacher, all of Chloe's teachers, Chloe's friends who helped and supported her while she was in school Rachel skinner, Lauren David, Kelsey Ellis, Rachel Gronow, Abi Trigg, Hannah Fry, Emily Pearce, Abbie Oliver, all of Chloe's drama and music buddies, if I have forgotten to mention anyone else who helped Chloe a huge thank you from us.
Karen and Jan I will never forget how much you supported Chloe especially the last few weeks she was so determined to be in school and thank you Mrs Bevan for letting Chloe be Cinderella. Chloe wanted to go to the dress rehearsal she was so funny she wouldn’t let me stay she said it would spoil the main show, she wanted Jan to be with her, she was so happy when I collected her from school she said mum I remembered all my lines didn't I Jan, even in Velindre Hospital when she was having Radiotherapy she was reciting her lines telling all the nurses to listen to her being Cinderella. Also a huge thank you to Mrs Hawkes music teacher who came to the house to help Chloe with the piano, and Mr Greenway for helping Chloe with her music, singing and drama, and everybody else who supported and helped her.
